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My Blog

  • Every step you take…

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    One step back, then one step forward.  We were released last night from the hospital because Morgan rebounded very quickly…GOOOOOOO Morgan!  We went into the hospital with an ANC (our immune counter) of 8 – you and me have about 1500 – 2000. So, not …

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  • Virus alert!!!

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    Unfortunately it is not the internet I am talking about.  Morgan’s counts were low this week, and with a virus going around, sure enough, we caught it.  Morgan stayed home from school on Tuesday because of a “feeling” I had, and sure enough, kids were …

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  • Countdown…

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    We had our weekly CBC tests today.  Her counts are low, so we need to be extra careful with the hazards of the common cold and the flu.  So, please do not take offense if Morgan asks that you not touch her after you cough, …

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  • Playing hooky…

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    Since Morgan’s 2nd grade class was away on an all-day outdoor fieldtrip, the two of us went out to play.  When Morgan was in the hospital for the 30+ day stay, she missed several movies she had been hoping to see.  No worries, they come …

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  • Snow days…

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    We planned on being back at school yesterday, but Mr. Snowfall had a different idea.  I convinced Morgan to let me sleep in a little – thank goodness, I got to sleep until 7am!  Thanks to Rachel for the great playdate during our school day …

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  • First Green Light…

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    Thumbs up for leaving the hospital today. Morgan currently is at Art Therapy.  She watches the clock like a hawk on art days, and makes sure she is there as soon as the doors open!  She is in great spirits, and plans on going to …

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  • The sun will come out…

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    Tomorrow (or today if you are reading this Tuesday) we hope to be leaving the hospital baring no fever around 3pm.  We hopefully will stay out of the hospital for 3 weeks before we head back in for another 5 days of heavy chemo.  During …

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  • School days…

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    We are on day 3 of Morgan’s chemo treatments.  So far so good.  Hardest part seems to be the mouth care of mouthwash rinse to help prevent the severity of her mouth sores.  I bought some similar mothwash so that we can swish, gurgle, and …

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  • Update from sedation…

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    We came into the hospital at 8am this morning…with Morgan of all things – HUNGRY!  They took her in for her Broviac (I am sure this is spelled incorrectly), LP and her first new dose of chemo.  She came thru the procedure wonderfully.  We are currently …

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  • Ripping off the Band-aid…

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    I am just going to say it.  No sugar coating.  The news is not what we wanted and needed to hear.  Morgan is not in full remission.  The treatment plan Morgan was on works 99% of the time.  She was in the 1% that did …

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