Knock, Knock, who’s there?
I know I have not been here to post all that has been happening with Morgan. I appreciate that so many of you care to know what is going on in the Life of Morgan. This has been a much tougher fight the second time around. The doctors told us this, but telling and living through it, are so different.
I have not been updating, because to type what is happening at the time, was to re-live what we were still trying to work through and understand ourselves. It is and has been emotionally and physically exhausting.
SO, we left the hospital over Memorial Day weekend, only to return 5 days later. Morgan’s liver and pancreas enlarged, and with a second transplant, these can be fatal. First priority was to determine why this was happening. Lots and lots of tests later, we THINK it was drug related. Therefore, once we stopped that specific medication, her liver and pancreas seem to have normalized. Her pain has been excruciating within her abdomen and throat. The doctors said that pancreas pain on a threshold chart is 1-Kidney Stones, 2-Pancreas, 3-Child birth. We are working a pain med program for that, however as of yesterday, she has not asked for additional pain medication – yeah!
Our main focus now is getting Morgan to eat, as she has not eaten in over 2 weeks. Her numbers are starting to stabilize, yet she needs platelets daily. I have learned how to stop her monitors from beeping when it says “Air in Line” (don’t tell the hospital), and Morgan has learned to swallow about 20 pills a day. They will be teaching me how to administer IV meds this week, I hope. Gets us one step closer to getting home! Morgan has a huge birthday coming up…10! We planned a birthday celebration for the 26th. Docs say that if we are still here and barring any complications, they will give her a DAYPASS for her celebration – phew! (But like that would have stopped me…yes, nurse, I am going to take Morgan for a stroll…car wheels screeching, catch us if you can!)
Morgan has not been talking since we came back into the hospital, and drawing completely stopped. For those that know Morgan, art is her therapy. Her skin and nails are regenerating, but not her spirit. As of Saturday night, until 2am with her dad, she began to draw, and sass him some. Gene said it was the best Father’s Day present ever!
I am sure I have glossed over the majority of the last month. Ultimately, I have to believe I am starting to see as I squint…way down over yonder, if you look real hard, YUP, light at the end of this crazy tunnel.
